My Family, and the Rare Medical Condition.

So, my three beautiful children all suffer from the same rare medical condition known as Hyperkalemic Periodic Paralysis, or HYPP for short.  HYPP – a muscle disorder characterised by episodic attacks of muscle weakness,  which is associated with increases of potassium concentration that has leaked out of cells in to the bloodstream.  Their condition is not evident to others until they are experiencing, what we refer to as, an episode, therefore they look normal.

I have discovered in my quest for knowledge and advice regarding this medical condition that there is, roughly, 1 person affected to 200,000/250,000 non-affected people.  It is also not as prevalent here in England as it is in other parts of the world.  Also that this condition was only really discovered in 1955.

So what happens……



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